![]() ![]() 5, 23- 25 The LupusLine, a telephone-based peer counseling service, 26 the CaNIOS Lupus Health Passport, a notebook containing a personalized treatment plan, preventive health tips and health information, 27 and a partner support program, have been piloted at academic lupus centers. 22Īmong lupus patients, efforts to enhance social support, health education, and self-efficacy to take charge of one’s health, improved physical function, disease activity and mental health. 18- 21 One study suggested that placing medical subspecialists at community health centers also improved care. 17 The use of a “health passport,” a tool containing personalized health information, was used to improve diabetes and hypertension control. 12- 16 Patient navigators, individuals with both an understanding of the community and knowledge of the healthcare system, have been shown to reduce obstacles to diagnosis and treatment. ![]() Interventions including peer support programs, educational initiatives, patient navigators, and “health passports” have been designed to improve the health of individuals with chronic diseases. 8, 9 Lack of access to healthcare, especially in medically underserved communities, may be responsible for many of the observed disparities. 2- 7 In particular, the highest lupus morbidity and mortality rates in the U.S. 1, 2 The prevalence, morbidity, and mortality associated with lupus are highest among racial and ethnic minorities, the poor, and those lacking medical insurance and education. ![]() Systemic lupus erythematosus (lupus) disproportionately affects women and vulnerable populations. ![]()
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